But you don't look sick...#3

This is an update from my last BYDLS-[But You Don't Look Sick] entry. Since then, I've been to the local hospitals-[2], one-[the PA] for a '2nd opinion' on my condition?...and the other-[the RBH] for a check-up and some new tests to do with 'my plumbing'. The results-[of both visits] were something of a shock to the system, because I wasn't expecting anything new...

My symptoms had been constantly tracking 'normal' lately and I thought I was mentally 'OK', and so I was in a good place...So, I'll share the RBH-visit first... I have to start 'self-cathetorisation'. The process was explained to me and I was given enough supplies to take home 'to-start-with', so ... 

I can report - it's not so bad really. It's just like having to do something for the very first time, relying on the verbal instruction of someone you've never met before, knowing that if you fail - you will be in a lot of pain and discomfort - and only yourself to blame, for the 'mess' on the floor!...[just like building my first 'Lego' set]...

Challenger-Deep...the world's deepest abyss!

I want to send my sincerest congratulions to Mr. James Cameron; Hollywood-Director; and now...Explorer-Extraordinaire!

For in the last 24-hours, during the most dangerous and daring journey - he participated in a solo-trip-to-the-bottom-of-the-sea...That's right, Mr Cameron is now only the 3rd-human-being to travel to 'Challenger-Deep'; the Marianas-Trench. Over 11-kilometers down...an unbelievable and courageous feat of endurance.

This trip was made possible by an equally courageous little-submersible, constructed in Australia over the past seven years by a few dedicated specialists...well done to you all!

Check out this link;  http://news.nationalgeographic.com/news/2012/03/120325-james-cameron-mariana-trench-challenger-deepest-returns-science-sub/

New to this...#7

Hello friends! It's been about twelve-(12) days since my last post, so I think I'll update you on my progress with the 'dreaded-lurgy',. I'm feeling better now than I was before I sent my previous post. This one has been a bit of a stayer (with me) this time, I was only thinking about it today - about three-(3) weeks or so! I'm past the worst of it - thank heaven's.

Today was the first time this year that I've felt 'cold' on the inside, enough to need to put on an extra layer of clothing - jumper and jeans. Just at the end of the 1st-month of Autumn.  I'm not proud of it, either! The rest of my clan is still getting around in T-shirts & shorts, though my wife 'Woodpuddle' is sitting on the lounge with her favourite-blanket...lol.

All that tells me is - that I must be an 'olde-fart' after all! So, at least we've got  the goodsense to 'stay-warm'...just may be acceptance too, I should speak for myself... Last week, I went for my latest check-up! ...It was my 2nd-appointment to the Urologist-Clinic at RBWH and I was nice and early, thanks to my wife's punctuality being what it is - brilliant. The line-up was short, it was 08:30 in the morning, so I knew there wouldn't be a problem.

New to this...#6

Firstly, I would like to ask a favour of you. Be patient with me..., please - say a Big Happy Birthday to Pi.... It's 3.14.2012 , so that means - it's Pi Day!!!... Happy Birthday to Pi, Happy Birthday to Pi, Happy Birthday to Pi, Happy Birthday to Pi - XXII / VII  - ok, I think I've said enough, or have I ??? For if it wasn't for Mr.Pythagoras, we would not be able to fly in planes, travel in trains, or drive in automobiles...hehe. Thank you very much.

This week, I've been layed-low by the dreaded-lurgy - the flu! In fact, my hole family have got it, all of us - but in various degrees of severity. From a 'two-hundred-tissues-a-day' runny nose-[TJ]; and sore throat-[MG], to a rolling-cough-[WP]; to wheezy-gurgle-[me]; oh - I forgot to say that [JD] has sailed through, unaffected-[or uninfected].

On the TM-medical front, I've started my increased doses of my drugs - and 2-weeks on, I'm feeling no 'weird' side-effects, or anything scary!..so I will continue on into the frontier. I have a couple of chores for my good son MG to do; 1.forms to collect from my local clinic tomorrow, and 2. Get a couple of prescriptions filled. 

Sorry folks - but I'm getting jerky in the legs and my hands are cramping too, so I'll be out of energy soon, my 'spoons' need a recharge and that means some snooze time... till later - please have some 'bloody-wishful-thinking' readers!

sincerely,
Glendon.

Unconditionally...

Our family is the best, most often the first point of support when we have a medical moment! What is it about our family, that intangible bond called on to bring you back-to-earth, when you have moments of selfishness? ..but still with support and love, unconditionally.

There are times when I think about my journey...the usual - Why me?...blah, blah,blah! It's always been my family to bring me back and put me in my place - stop being the victim! Ok  - my family's support of me is the main reason I've decided to do this blog.

But You Don't Look Sick...#2

Lately I've been having lots of sleeplessness, sometimes going for 20hrs at a time. My body-clock is awry, to the point that at this moment - 2:32am, I feel not at all like going to bed... I tend to rest, only when I'm completely exhausted - that way I have the most chance of actually sleeping for more than 2-hrs, as my pain levels at the present, prevent me from enjoying a 'normal' sleep pattern-[7-8hrs]. I find myself blogging! Sharing my thoughts and feelings with you is therapeutic, and part of that helps me to feel a bit more normal. Thank you. I want to share something with you that really tugged my heart-strings, I was so emotional my eyes leaked down my face!

I've just finished watching a beautiful documentary, about a couple of Australians in 1960's London, when it was still legal-to-purchase a lion-cub... so they did and named him 'Christian'. They nurtured him and loved him so much they wanted to set him free. So they  went from Harrod's of London to the Wilds of Kenya. Here is some of the documentary - a reunion...I think the best bit;

New to this...#5

It's amazing when good friends get together, even if it is only by the telephone, oh there I go again, giving away my age! ...Talking on the telephone - for 108-minutes, no less!.. See, I can talk (my butt-off), when a buddy is on the other end of the line...

I've been talking with Louise - a fellow TM'er-[for 7-8 years I think]. She's been like a rock to me. We can talk about (TM) things; pain-levels; treatments old and new; our own progress - on a day-to-day level. In hindsight, having someone there to listen to you - when all the 'bad-stuff' has been happening to your body [still, after months and years].

International Rare Disease Day...!

Well, it's 3:33am in the morning here in Bris-vegas! I apologise for any typo's in advance, ok..I have been to my GP today! For another fortnightly check up, this time it was to complete some forms, check my BP, and a review of my visit to Dr.P.S's clinic..The forms got done  - my BP is in the 'good' range - and the review was to inform GP about changes to my medicine-dosages, prescription-renewals etc..

Today is "International Rare Disease Day" - I have uploaded 'my-story' + photo to this site;
Rare Disease Day I urge all of you to have a look at this site - I think it's really awesome! What a brilliant idea - to have a whole day dedicated to increasing the 'awareness', worldwide. This is just the vehicle we need to get [our politicians] more pro-active in the understanding of these 'rare' ailments.

Besides that - I have included another 'page', titled; "Related Research" [see link -  http://www.qbi.uq.edu.au/071211-much-needed-good-news-for-sufferers-of-chronic-pain ]. This is where I'll be posting some of the latest pieces of truth, and ideas from medical-professionals that  I have researched - around Australia and New Zealand. It will include information related to all things neurological, not just TM. The first piece is from the QBI-[Queensland-Brain-Institute], while it is rather 'specific' & quite technical, never-the-less it's a very good read...I have also added a new link in the 'helpful links' page - directly to the QBI. It is very informative.

Happy Birthday GoatDodders..!

It was my birthday two days ago-[Wednesday], so I did what you suggested.. I did some 'bloody-wishful-thinking'.. that's right and it works! It's definitely better than feeling sorry for oneself, which I don't recommend at all-[feeling sorry for yourself that is]... I was upbeat  - It's not every day you  turn 46, right!  That's 16,801-days on this beautiful BLUE ORB!!!

For my 46BD - from my beautiful family-TRC, I got;

• an Apple that makes music and a card-of-plastictunes
• a whiteset of earphones by Son-y
• coloured cottons XXL2-fit my skin...and more stuff too!

Anyway, so I'd just been for my four-monthly check-up on the previous day - with Dr.P.Sandstrom's outpatient-clinic at PCH-[actually, it was with one of his registrar's], a 'minion' no less. I think that I'm up to six-[minion's], now.. but it's cool - Dr.P.S keeps a pretty close-EYE on his entourage  and they like to ask a lot of questions too. I always get a great response from them when I tell my 'story'- he,he. 

We had a good discussion about things - any progress or setbacks. I like going over my history all over-again as sometimes I know things they don't know I know! I'm getting better at it, sometimes I remember the correct terminologies to use like; 'peripheral-neuralgia', and 'ulnar-nerve' too [hey, it's not so bad in Australia], for being an 'outpatient' in a Hospital-Clinic, ..thank goodness...

My dosage for 'Gabapentin' is increasing  - chiefly to cover my 'background' neuralgia pain, which has been aggravated since my 'car-accident' last year; and my dosage for 'Amitriptyline' is increasing - to help me with my peripheral-neuralgia. My dosage for 'Digesic'-[patch] is staying [x2 per week]. So, that was my 'grease & oil change',  I'm good... for another 3 months!

p.s.    ...and for all the right reasons - I love my family sooooo much!!!

But you don't look sick...!

Thank you for all the support, it's really amazing!  I've titled this post; "but you don't look sick...!" because it relates to a little yarn-of-truth called, "The Spoon Theory" written by Christine Miserandino, a complete stranger to me. Christine is living with 'Lupus' and I must sincerely thank her for helping me realise [my] pain isn't always felt by those I love and care about. And, that I have to take account of the decisions I make when it involves others, especially my family. I can relate to her story [me living with Transverse Myelitis]. I can also thank my wife 'Woodpuddle', for finding this yarn on the Internet and sending it to me, some time ago.

I want to share something with you that happened to me yesterday. My beautiful wife 'Woodpuddle' is so bloody patient with me! ...So yesterday, WP came up with the idea for all of us at the TRC-[my family] to go for a drive in to 'Southbank', then to Scouts - and I wanted to go along too. I was 'quizzed' by my dearest;"are you sure you're up to this?" I said; 'yep', nodding in the affirmative! Well, off we went in the car..it wasn't too long , before travelling-in-the-car become more [painful], than I realised. Pretty soon after that, I started to argue with everyone about the shortest-route to take! ..I didn't even think; 'Why am I arguing?' No, not even when my youngest - TJ said; 'I love it when you and Mum have a cranky with each other, it's so funny!'... 

But the thing is, I should've understood that "it just didn't matter" - we were just out for a FUN time!!! - Eventually, after a few minutes of awkward silence, 'The Penny-Dropped' and I apologised, very honestly to all my family. We continued to Southbank, then later to Scouts. The day was resurrected - looking back, I feel like a fool because I lost my cool. My wife new I probably wasn't up to a full day, just yet. I pushed myself  - and I'm paying for it, today - I am living the spoon-theory. Please read on...

"The Spoon Theory"
by Christine Miserandino   www.butyoudontlooksick.com

My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.
As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know?
I started to ramble on about pills, and aches and pains, but she kept pursuing, and didn’t seem satisfied with my answers. I was a little surprised as being my roommate in college and friend for years; I thought she already knew the medical definition of Lupus. Then she looked at me with a face every sick person knows well, the face of pure curiosity about something no one healthy can truly understand. She asked what it felt like, not physically, but what it felt like to be me, to be sick.
As I tried to gain my composure, I glanced around the table for help or guidance, or at least stall for time to think. I was trying to find the right words. How do I answer a question I never was able to answer for myself? How do I explain every detail of every day being effected, and give the emotions a sick person goes through with clarity. I could have given up, cracked a joke like I usually do, and changed the subject, but I remember thinking if I don’t try to explain this, how could I ever expect her to understand. If I can’t explain this to my best friend, how could I explain my world to anyone else? I had to at least try.
At that moment, the spoon theory was born. I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables. I looked at her in the eyes and said “Here you go, you have Lupus”. She looked at me slightly confused, as anyone would when they are being handed a bouquet of spoons. The cold metal spoons clanked in my hands, as I grouped them together and shoved them into her hands.
I explained that the difference in being sick and being healthy is having to make choices or to consciously think about things when the rest of the world doesn’t have to. The healthy have the luxury of a life without choices, a gift most people take for granted.
Most people start the day with unlimited amount of possibilities, and energy to do whatever they desire, especially young people. For the most part, they do not need to worry about the effects of their actions. So for my explanation, I used spoons to convey this point. I wanted something for her to actually hold, for me to then take away, since most people who get sick feel a “loss” of a life they once knew. If I was in control of taking away the spoons, then she would know what it feels like to have someone or something else, in this case Lupus, being in control.
She grabbed the spoons with excitement. She didn’t understand what I was doing, but she is always up for a good time, so I guess she thought I was cracking a joke of some kind like I usually do when talking about touchy topics. Little did she know how serious I would become?
I asked her to count her spoons. She asked why, and I explained that when you are healthy you expect to have a never-ending supply of “spoons”. But when you have to now plan your day, you need to know exactly how many “spoons” you are starting with. It doesn’t guarantee that you might not lose some along the way, but at least it helps to know where you are starting. She counted out 12 spoons. She laughed and said she wanted more. I said no, and I knew right away that this little game would work, when she looked disappointed, and we hadn’t even started yet. I’ve wanted more “spoons” for years and haven’t found a way yet to get more, why should she? I also told her to always be conscious of how many she had, and not to drop them because she can never forget she has Lupus.
I asked her to list off the tasks of her day, including the most simple. As, she rattled off daily chores, or just fun things to do; I explained how each one would cost her a spoon. When she jumped right into getting ready for work as her first task of the morning, I cut her off and took away a spoon. I practically jumped down her throat. I said ” No! You don’t just get up. You have to crack open your eyes, and then realize you are late. You didn’t sleep well the night before. You have to crawl out of bed, and then you have to make your self something to eat before you can do anything else, because if you don’t, you can’t take your medicine, and if you don’t take your medicine you might as well give up all your spoons for today and tomorrow too.” I quickly took away a spoon and she realized she hasn’t even gotten dressed yet. Showering cost her spoon, just for washing her hair and shaving her legs. Reaching high and low that early in the morning could actually cost more than one spoon, but I figured I would give her a break; I didn’t want to scare her right away. Getting dressed was worth another spoon. I stopped her and broke down every task to show her how every little detail needs to be thought about. You cannot simply just throw clothes on when you are sick. I explained that I have to see what clothes I can physically put on, if my hands hurt that day buttons are out of the question. If I have bruises that day, I need to wear long sleeves, and if I have a fever I need a sweater to stay warm and so on. If my hair is falling out I need to spend more time to look presentable, and then you need to factor in another 5 minutes for feeling badly that it took you 2 hours to do all this.
I think she was starting to understand when she theoretically didn’t even get to work, and she was left with 6 spoons. I then explained to her that she needed to choose the rest of her day wisely, since when your “spoons” are gone, they are gone. Sometimes you can borrow against tomorrow’s “spoons”, but just think how hard tomorrow will be with less “spoons”. I also needed to explain that a person who is sick always lives with the looming thought that tomorrow may be the day that a cold comes, or an infection, or any number of things that could be very dangerous. So you do not want to run low on “spoons”, because you never know when you truly will need them. I didn’t want to depress her, but I needed to be realistic, and unfortunately being prepared for the worst is part of a real day for me.
We went through the rest of the day, and she slowly learned that skipping lunch would cost her a spoon, as well as standing on a train, or even typing at her computer too long. She was forced to make choices and think about things differently. Hypothetically, she had to choose not to run errands, so that she could eat dinner that night.
When we got to the end of her pretend day, she said she was hungry. I summarized that she had to eat dinner but she only had one spoon left. If she cooked, she wouldn’t have enough energy to clean the pots. If she went out for dinner, she might be too tired to drive home safely. Then I also explained, that I didn’t even bother to add into this game, that she was so nauseous, that cooking was probably out of the question anyway. So she decided to make soup, it was easy. I then said it is only 7pm, you have the rest of the night but maybe end up with one spoon, so you can do something fun, or clean your apartment, or do chores, but you can’t do it all.
I rarely see her emotional, so when I saw her upset I knew maybe I was getting through to her. I didn’t want my friend to be upset, but at the same time I was happy to think finally maybe someone understood me a little bit. She had tears in her eyes and asked quietly “Christine, How do you do it? Do you really do this everyday?” I explained that some days were worse then others; some days I have more spoons then most. But I can never make it go away and I can’t forget about it, I always have to think about it. I handed her a spoon I had been holding in reserve. I said simply, “I have learned to live life with an extra spoon in my pocket, in reserve. You need to always be prepared.”
Its hard, the hardest thing I ever had to learn is to slow down, and not do everything. I fight this to this day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wanted her to feel that frustration. I wanted her to understand, that everything everyone else does comes so easy, but for me it is one hundred little jobs in one. I need to think about the weather, my temperature that day, and the whole day’s plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It is in that lifestyle, the difference between being sick and healthy. It is the beautiful ability to not think and just do. I miss that freedom. I miss never having to count “spoons”.
After we were emotional and talked about this for a little while longer, I sensed she was sad. Maybe she finally understood. Maybe she realized that she never could truly and honestly say she understands. But at least now she might not complain so much when I can’t go out for dinner some nights, or when I never seem to make it to her house and she always has to drive to mine. I gave her a hug when we walked out of the diner. I had the one spoon in my hand and I said “Don’t worry. I see this as a blessing. I have been forced to think about everything I do. Do you know how many spoons people waste everyday? I don’t have room for wasted time, or wasted “spoons” and I chose to spend this time with you.”
Ever since this night, I have used the spoon theory to explain my life to many people. In fact, my family and friends refer to spoons all the time. It has been a code word for what I can and cannot do. Once people understand the spoon theory they seem to understand me better, but I also think they live their life a little differently too. I think it isn’t just good for understanding Lupus, but anyone dealing with any disability or illness. Hopefully, they don’t take so much for granted or their life in general. I give a piece of myself, in every sense of the word when I do anything. It has become an inside joke. I have become famous for saying to people jokingly that they should feel special when I spend time with them, because they have one of my “spoons”.
© Christine Miserandino

New to this...#4

Wow... I've just been setting up my new twitter account; @GoatDodders , so please follow me! I've only done a few tweets so far, but I've started to follow some of my favourite people..lol. And I've put the word out to a few of my close friends about this blog, fingers-crossed they will join in the fun... or at least be able to laugh (at me) too!

It was the same for me too...

Well, it's been about three weeks since my last post - sorry BWT-blog!
I listened to a mp3 pod-cast today, and I was 'blown-away' by a 2011 interview between our  local-ABC radio announcer,  and a TM sufferer. But not just another one, this man is a mid-60's 'Professor of Psychology' at our local Children's Hospital. I was taken a-back by the situation surrounding his 'attack', how it happened so quickly.. it goes like this; 

...While he was sitting at a desk writing a paper for his PhD-students, a 'sharp-pain' in his side which persisted for a few minutes, then travelled down his leg, so he tried to get up but his leg gave out and he fell to the floor. He has a medical background - so got thinking and self-diagnosed that he had a 'Aortic-Aneurysm'.

And he started calling out to his wife, to take him to the doctor, or the hospital. When he got to hospital and was being seen by the emergency-ward staff doctor, he noticed how the medico's were a little bemused by his symptoms; acute pain with numbness down his legs.

Eventually, paralysis from the lower-chest down to his toes... to cut a long story short; Soon a more 'experienced' doctor came to see him and almost immediately diagnosed; Acute-TM!!! Unbelievably it was not showing up on any of his charts, at all. Not even in the CT-scans; the MRI-scans; the X-rays - nothing!!!      

New to this... #2

Well, my fingers have improved to the point I can type, so I've been fumbling my way around the interwebs, and while family life goes on and around Woodpuddle -  looking for a fantastic spark of wonder to jump out at me was a worthwhile pastime.

New to this... #3

Please accept my apologies for the cryptic message in the previous post, #2. What I was trying to say was that I have been drawing to take up my time in between the spasms and stuff, when my left-hand is working properly. I've even started to use my right-hand too-[though just for filling-in with dots]. I started in 2007. 

It gets pretty damned boring-[and depressing] in a hospital bed, in a shared ward with 3-other patients each with nothing better to do with themselves than moan and groan, go to sleep, get woken up by the meal-trays çlunking' on the bed frames, eat, go to the bathroom, sleep, and be treated like a box full of pin-cushions at a garage/yard sale by the team of interns on their respective rounds at sunrise and sunset - day after day. 

So, when my wife suggested to me to bring me some pens and a sketch book.. the best I could muster was a muffled-[tongue-cramping!]-OK. I was trying to summon some control of my motor-functions, but it was painfully funny to my beautiful family. Pretty soon I found a part of me that could 'take me away' from reality, for a small part of each day..

New to this....

Hi there fellow-chronic-pain-sufferers. This is my story.. I've existed with chronic-pain continuously now for 4-years, 9-months, 29-days... but who's counting. Since I had a Flu-shot; Flu-VAX; what-ever they call it these days. 

For me it was my first time flu-needle. And my last. Never again. I had had an Adverse Reaction to the 'germ' injected into my arm. My immune system went into overdrive and didn't stop simply at absorbing the vaccine. No, not me, I was invaded by the 'enemy' and my defences went ballistic! ..oh yeah baby!

So [jumping forward for a bit], I found the strength today. To say something, vent, bitch, moan get it off my chest.. I'm not sorry for all the metaphors, that's how I am. Sometimes lazy, hazy, fog-days but then I have moments of clarity and other times I don't. It's now, Wednesday 18th January, 2012. And I'm typing this ''blog", my very first blog - on my son's net-book computer. 

It has those 'flat-keys'.. I probably type about 15-20 wpm, using my thumbs and index-fingers- slow, yes. I'm wearing special gloves with padding and Velcro, they help by being-very tight-to fit and applying pressure in the fleshy-regions [between the index-to-thumb] - to relieve my cramps.. Anyway, I've used a cute and nerdy [free] widget-off-the-web that's calculated my chronic-pain-elapsed-time to approximately; 

• 252-weeks; or  
• 1765-days; or 
• 42,360-hours; or 
• 2,542,600-minutes; or 
• 152,496,000-seconds 

Which is 10.52% of my existence on this beautiful, blue-planet.What ever rocks your world; floats-your-boat; ..blah-dee-blah-blah!! ..I thought that really puts it into perspective for me. I was shocked, actually...! That's a bloody long time to be doing anything - sailing around the word, walking from coast-to-coast, or learning to become a professional - anything at all.

So, here's what's been happening with me since Day-1. That was Wednesday, 21st March March 2007, and it's since then that I've been sharing my life with chronic-pain. To feel-pain, live-pain, grow-in-pain, every-day, every-way. But, to be thankful is hard. Damned hard mostly... and being in pain 24/7 is bloody character-building, that's for sure.

I have been on a special drug - Neurontin [also known as Gabapentin], from when I was diagnosed with "Transverse-Myelitis"-[TM], back in April '11, by my Neurologist. It's been a long time waiting, having to go from this specialist, to that specialist. Tests, tests, and more bloody tests. All the while being told that the symptoms I was displaying were strange indeed.

That-[the symptoms]; .."Could not possibly have anything at all to do with your flu-shot"..; and  that; .. It's all in your head G------. All I knew was this; before the vaccine-injection - I was normal....., and after the vaccine-injection, I wasn't. 

In fact, within 24-hrs of first having the flu-shot, I was on a lumpy hospital-gurny bed in Emergency with a fever of 42deg.C. A quivering, cramping, increasingly-paralysed specimen. That was my introduction to a cluster of symptoms, that over time would become diagnosed as a version of TM. My Neurologist has been gently explaining how the condition would affect my nervous-system over time.

So, I had never heard of Transverse-Myelitis. I was in shock for quite a while-[days, weeks], not realising what it meant for me and my family. But, through continued visits to the clinic, each time I was given more and more information. Each time it was like day-ja-vu. Each time, a new intern. Same tests, over and over.

With a little investigation on our behalf -[we Googled it], my wife-J found out about a small group called Spinal-Injuries-Association, here in Queensland. I've since attended a TM-Day event, when we had a live video-conference with the TM-Association in the USA. My wife and I met some other beautiful people with the same condition. Click on the links to discover for yourself. There is so much information, and the staff is wonderful. 

How are you? Please join Wishful Thinking, or comment, or follow my blog. But first, let me tell you a yarn about my road - less travelled. Here goes....My name is 'Dodders-[a.k.a. Goat]. I prefer Goat.  This is my first blog! ..It came to me, I was thinking about how I feel and a little voice in my head said "GET IT OUT THERE"" . So this is it. Raw. Rough and ready..I haven't done any blogs, but I have to start somewhere, right!  Sometimes, I'll go here - then go over there, jump-back in time, then forward to now. Please be patient with me!

I am 45-years old, a father of 3 boys; Minigoat-19; JD-15; TJ-13. Married to my lovely wife [of 19 years this April] Woodpuddle, who I adore and rely on every day-[lately]. A dog; Mackenzie-[a 13yo-black Labrador]. A cat; Patch-[a 10yo Tabbie]. A few chooks; Psycho Sally, Cyclops, Merl-the-Girl-[plus another one, but I can't remember her name at the moment]. ..oh, it's Polly! ..and we recently lost a 3yo-Goldfish-[Tom], to higher service. 

He [Tom] was the healthiest looking specimen I'd ever seen, but he just stopped - literally! To go from -swimming, eating, swimming, eating, swimming... to -----------------...flat line! ..we think that maybe it was his time to exist in a parallel universe, so off he went! 

We live in a little corner of Queensland, Australia - a beautiful part of the world. We call it 'Woodpuddle'. There is peace and serenity here.. truly. Bright and airy, one day - then quiet-but noisy.. the birds and the insects of the bush to keep things in balance. We live in a beautiful old 3-BR-Queenslander", up on poles.. We do feel blessed, there I said it. Truly. 

BTW - Heres' some more information I've condensed, explaining about TM that you may find useful;


What is Transverse Myelitis? Transverse Myelitis is a neurological condition sometimes triggered by illness and is a 'known' adverse reaction to flu vaccinations-, but is as likely to develop out of the blue. 

People affected by TM can be left without bladder or bowel control and needing to use a wheelchair, or other mobility aid-. Symptoms of TM can be similar to Multiple-Sclerosis

Like with MS, sufferers with TM can feel 'pins-and-needles' in their upper and lower limbs and can be particularly sensitive to heat and cold. They can experience a tight band-like feeling around their middle which I've been told is called 'Banding'.