Living with and raising the awareness of Transverse-Myelitis and how it's affecting me and my family. A rare neuro-immunological-condition, TM attacks the nervous-systems of up to 8 people per-million throughout the world, with 1,400 new cases each year. Around 150 Australians have TM and this is my story...
Transverse Myelitis Association Members? (..this one's for you guys!)
Hi folks, I hope this message reaches you - feeling as good as you can be! I thought I might "share" this with you all. Especially if you suffer from 'Neuropathic-Pain'. Remember this podcast is in America/Eastern Standard Time, so make a note in your diaries about your "corrected-time"...
Join The TMA’s Ask the Expert Podcast Series on Understanding and Managing Neuropathic Pain on May 9th at 1:00 PM Eastern Time.
Dr. Scott Newsome, DO from The Johns Hopkins Transverse Myelitis Center in Baltimore and Dr. Allen DeSena, MD from The University of Texas Southwestern TM and NMO Center in Dallas will lead the conversation and answer questions from our community.
What is neuropathic pain? Why is it different from nociceptive pain? What causes it? What are the treatments commonly used? Are there alternative therapies that work? Are there times of the day when pain is worse?
If you have wondered about these questions and many more, please join this podcast to learn and understand more about neuropathic pain after a diagnosis of Transverse Myelitis, Neuromyelitis Optica or Acute Disseminated Encephalomyelitis.
The goal of this education podcast is to learn from the experts who are focused on research and clinical care of these rare neuro-immune disorders - transverse myelitis, ADEM and NMO.
Please submit your questions on this topic that you would like to ask the experts by going to: Google Moderator.
If your question is already submitted by someone else, please vote for it so we know which are the most common questions from our community.
If you don't have a Google account or don't want to create one, please send us an email at firstname.lastname@example.org to submit any questions you may have. In the subject line, please use "May 9, 2014 Podcast Question".
During the podcast, you can interact with the speakers and the moderator through our TMA Facebook page!
The Transverse Myelitis Association
ABOUT OUR GUEST SPEAKERS
Dr. Scott Newsome specializes in the care of patients with neuroimmunological and neuroinflammatory disorders of the central nervous system. He has special interest in evaluating and treating patients with multiple sclerosis, transverse myelitis, neuromyelitis optica, and stiff person syndrome. Dr. Newsome works within the division of Neuroimmunology and Neuroinfectious diseases at Johns Hopkins Hospital. He joined the Johns Hopkins Multiple Sclerosis and Transverse Myelitis centers after completing fellowship and he is currently the director of the Johns Hopkins Neurology Outpatient Services and the Neurology Infusion Center.
Dr. Newsome received his medical degree from the New York College of Osteopathic Medicine and graduated with honors. He then completed his internship in internal medicine and residency in neurology at Albany Medical Center. During Dr. Newsome’s neurology residency, he was awarded the Golden Apple Outstanding Resident Teaching Award and later was chosen to be chief resident. He subsequently went on to complete a fellowship in neuroimmunology at The Johns Hopkins Hospital with the support of a Sylvia Lawry Physician Fellowship from the National Multiple Sclerosis Society.
Dr. Newsome’s main research focuses on the use of new quantitative clinical outcome measures and imaging techniques in multiple sclerosis. These tools may improve the precision of disability measurements in multiple sclerosis and other central nervous system disorders. Currently, Dr. Newsome is involved in several clinical trials for multiple sclerosis, transverse myelitis, and neuromyelitis optica. He is also serving as chair for the Consensus Conference Committee of the Consortium of MS Centers and is an advisor for the National Multiple Sclerosis Society Clinical Advisory Committee.
Dr. Allen DeSena is currently TMA James T. Lubin Fellow at University of Texas Southwestern in Dallas pursuing a career in clinical and research on rare neuro-immune diseases. Dr. DeSena attended medical school at Loyola-Stritch School of Medicine in Maywood, IL, located in the greater Chicago area. From there, he went on to complete a residency in general pediatrics in New Orleans, LA at the Tulane-Ochsner pediatric program, and he earned his board certification in general pediatrics in 2009. Following his general pediatrics training, he moved to Dallas, TX, where he completed a residency in pediatric neurology at UT-Southwestern Medical Center in conjunction with Children’s Medical Center-Dallas and Parkland Memorial Hospital. During that time, his interest in transverse myelitis and other neuroimmunologic disorders blossomed, and he pursued further training in those areas. He is the first pediatric neurology fellow to study the rare spectrum of neuro-immunological disorders, with a particular focus on Transverse Myelitis. Later this summer, Dr. DeSena will be establishing a Neuroimmunology Center at Cincinnati Children’s Hospital and Medical Center in Cincinnati, OH.