Wednesday, 6 February 2013

A BIG thank you! My friends...

From left to right is the raised flood-bank along Cedar Creek - a tranquil walk 
It has come to my attention, that I have to say a very big thank you to my friends - those folks out there in the 'interwebs', who have taken the time out of there busy lives to visit my blog - read my 'ranting' sometimes 'random' posts, but thinking about my story enough to stop and leave their comments.  It really makes a massive, positive difference to me!  


So, thank you folks;

+Priscilla Hedlin ; +Kevin Weilacher ; +thillai raj ; +The Onion ; +Optimistic Existentialist ; +Cheri Interman ; +Chronic Pain Queensland ; +Todd Tarno ; +Tú Phạm ; +Jaclyn Allmon; +Lew Gray ; +ATLAS Experiment ; +Richard Branson ; +Susan Kleinz ; +Jayne McCubbin ; +Akua Hope ; +Chronic Pain Queensland ; +Vicki Whitford ; +Kouto Yamamoto ; +Linda Egli ; +Leslie Samuel ; +Janice Nichols ; +Barbara H. ; +Barbara Alma ; +Ron Garan ; +CERN ; +Abdu'l-Hanif Al Shukri ;

I thought I might just show a glimpse of 'our' little Cedar Creek. It plays a part in my journey - in the background - trickling, flowing, bubbling along. She can be both serene and at times bad tempered. We love it...



A peaceful swimming-hole - our beautiful Cedar Creek

Sadly, due to the unforseen 'Monsoon' which visited upon us 2-weeks ago - and delivered howling winds and torrential rains - our beautiful Cedar Creek has been somewhat remodelled...









Cedar Creek, view of driveway -[gone!]- The raging torrent!


Cedar Creek Road Causeway - 16in' /400mm water over road. Eventually - the Creek swelled to approx. 40in'/1100mm over the road - and the signs went under!

However - I never lose my wonderment for 'Mother-Nature'. How she can be both tolerant and terrible - in the space of a day. But, out of all the maelstrom can come new growth, new beginnings, a fresh start. Wonderful...



The NEW Cedar Creek -  exposed, raw, ready for action - new swimming holes to explore!

A new log jam - so Cedar Creek picks another route! Rocks, rocks, everywhere!

Sunday, 3 February 2013

Hello 2013! Can you believe it? A 2nd Australia Day!

Tropical Cyclone 'Oswald"
I feel like a survivor - in so many ways.  I know that sounds like a tired old statement, but so what.  It is my reality, so you can hear-(?) me say it because I love being alive right now!  Maybe it's just the flavour of my "Moccona"-coffee & "Dilmah"-tea cocktail in the bottom of my mug - you know when it gets to the bottom and the good bits rush in!  So, when I feel like I do - like I do now - mostly, I forget to share it around on here in my blog, because I have to remember to blog!  That's not easy for me, at 46 with the memory that I've got - but considering all that I have been through, I feel for the survivors of the monsoon-floods in Bundaberg, when the "Burnett-River' burst it's banks, in Queensland on Saturday 26th January, last weekend...




Queensland Rivers in flood...



So in my small way, I want to say a tribute to the ordinary people of Bundaberg for being so tolerant in the face of despair.  After having lost everything - memories, belongings, houses, even the lives of loved ones - they still show a side that makes me proud to be Aussie - true grit!  When the entire northern half of their city has been obliterated by Natures fury-(Tropical-Cyclone 'Oswald"), so absolute strangers come together to help their brothers and sisters, clean up the mess left by the maelstrom from last weekend...






North Bundaberg - (in flood)

The Premier of Queensland - Mr. Campbell Newman, has graciously issued a proclamation; "That Queenslanders can have a second chance to celebrate "Australia-Day"-(formerly held every 26th January), to be given a 2nd Australia Day, on the 3rd March 2013.  Thank you sir - for giving  this courtesy!  Let's hope we can have a good weather day to celebrate, our day!

Too easy can I forget that there is always someone out there - somewhere, doing it tougher than me!  I wish I could remember that more often, than when I get reminded of that - When a tragic event occurs - somewhere around the world, or even in my own 'backyard'.  It also means that I can be grateful for the level of health I have right now too!  And that we can be good to each other, loving to our families, respectful to our friends, and when they need a helping hand - to give them a hand before they ask for it! Just like Good-Charlotte! 

Our thoughts and prayers are with you folks...

Friday, 28 December 2012

Feel like a 2nd class citizen?

This is a real account of what my wife had to endure, when trying to do the 'right-thing'!  (Names have been altered).  A true story...(worthy of @Richard Branson?).  I recently applied for and received the 'Disability-Parking-Permit'-(Australian version).  I do not get out of the house very often due to my disability, so the rare occasion that I am is a major deal for me (and my family).

Anyway, this particular day, my wife took me to see a movie at the cinema-plex.  We were in the car-park, and we noticed a message in front of this car-parking-space - and consequently now have a 'card' from 'W*******d', permitting (me) to have free-parking.  A 'godsend' for me and others with disabilities.  We were made aware of the availability of using a powered-scooter-chair, but as I 'can walk-albeit with problems', I'm not interested in using a wheelchair at this point.


In October, my wife took me to the movies - a 'spur-of-the-moment-decision' (after I'd been for a specialist-Dr's appointment).  My first day out of the house in ages!  And, an opportunity to do something 'just-for-fun'.  As I have a 'rare'-neurological-condition, called "Transverse-Myelitis" - and compounded by a 'chronic'-back-injury - my mobility is affected and I use a 'Canadian-crutch to get around - I can 'walk', maybe 50m to 100m before I can't go any further (leg-tremors; spasms; back-pain).


My wife parks the car, as close to the entry of the cinemas/shops, as she can.  I insisted that she pops-down and gets the parking-ticket 'validated' - every little bit helps!  So, with key-tag inhand (and this way we don't have to stress about 'rushing-away', once the movie has finished), she can go do our grocery-shopping, then the pharmacy to grab my medicine etc.


We hadn't done this before (parking-ticket-validation), so she went to the 'Concierge' as directed on the ticket!


My wife was greeted by Miss 'Chandry', who promptly, and loudly asks who the 'Tag' belongs to?  My wife says; ..."my Husband".  She then again is told 'loudly' that to use the 'Tag', he (me)-'the disabled person', must come to the Concierge-counter.  SO - for (me) to receive the 'free-parking' - I would have to walk the distance from the cinema's-(half way along the length of the entire shopping-center), about 500m - to have my 'Tag'-validated!  For me (a MAJOR-problem) and then walk BACK!  Surely defeats the purpose of parking near the entrance to the movies!


It would have taken me - the best part of an hour (with regular-stops), to walk down-and-back.  Maybe, even longer depending on my pain-levels.  This is not including the exhaustion I would experience from the effort required to walk that far.   My wife explained this to her and exclaimed the ridiculousness of that for me - how I could not do that (and shouldn't have to).  What is the point of me having to put that much effort in (to go to the movies), so my wife went to take the 'Tag' and the car-keys, back from 'Chandry' who had claimed them, when she first-asked for the validation.


My wife was very upset - in shock at the way she was being spoken to (she was in tears), and then angered when in the process of collecting her keys (exclaiming), she couldn't be bothered - Chandry pulled the keys and 'Tag' back (deciding) to let her 'do-it-this-time' - and 'lecturing' my wife, about;..."how people rort the 'system'".  My wife was told - "there is another Concierge, closer to the cinemas", when she asked if there was somewhere else to do it?  My wife felt that  Chandry's whole 'attitude' was condescending!  She was rude and certainly was disrespectful.


So, with a 'free-ticket' for parking (and tears 'streaming' down her face), my wife headed back to look for the other Concierge-desk - but found the 'Customer-Care-Area', instead!  At this point, she decided to contact; "Center-Management".  The lovely young lady was patient; respectful; and understanding too (my wife didn't catch her name), but she was given some forms to fill in... etc., etc.


As the wife of a disabled person, she is appalled that I (or any other disabled person) have to go to such lengths to get our 'Tags' validated. Remembering that it wasn't long ago - we could go shopping /movies there, without having to PAY to shop etc.


It is 'hard-enough'.. Every Single Day.. Without finding another 'Obstacle In Our Way'..


I understand there are scum in the community - who make it difficult for others - but the majority of us are respectful.  Law abiding and grateful for any little bit of help we get!  My wife shops at 'W*******d' and has NEVER thought about 'rorting-the-system' - and it angers us, that others do!


We don't understand the assumption that unless the 'disabled-person' fronts up at the Concierge-Desk - then we are trying to take advantage of 'W*******d'.


I am grateful for the opportunity when my wife takes me on a rare outing - that we can park 'close' to entrances - and are not burdoned by time constraints and having to pay for the pleasure of spending money at 'W*******d'.  But, after this event - we don't believe it worth it, for the time and effort required.


We are disgusted - that we were made to feel like '2nd-Class-citizens' by using this facility.  We are sure that is not the way 'W*******d' wishes to be represented.  We're not actually making a complaint about 'Chandry' - and the customer-service 'skills' that she is lacking in; and/or the 'wrong-person-in-the-wrong-place' - thoughts we have.  Concierge - she is not!


I am distressed that a 'disabled-person' (like me), would have to walk so far - to have a 'Tag' validated.  And, that a carer; wife; husband; friend; or child; is unable to help the disabled person.  I am also worried, that if I had sent one of my children to validate the 'Tag' - how they would have been treated - trying to help their Dad!


I'm not sure what can be done to remedy this situation - for holders of 'Disabled-Parking-Permits'; for their carers and family members - but, surely it shouldn't be so hard to go and enjoy a movie, as a disabled person! 





Wednesday, 31 October 2012

Happy Halloween Two U ALL!

Well, it's been 30 days since I last posted on my blog! ..I feel like it has been a lot longer, actually I have some news - it seems it is "All in my head"! Yeah - I know it has been a long story so far, and I have been told by more than a few doctors that it is just in my head!!!!!!



But, today I saw a psychiatrist - for the first time, as part of my involvement in the "Professor Tess Cramond-Multidisciplinary-Pain-Clinic" - at the Royal Brisbane & Women's Hospital, at Herston, (on Brisbane's Northside). I am still mentally 'drained' from the experience - my Dr, (she) was so nice and able to ask the exactly right questions - that I found myself travelling backwards and forwards, through my life's "timeline", almost effortlessly.


I was in there with my Dr (and another student/Dr too), discussing everything - from my episode with the "influenza-shot" (and my associated auto-immune reaction), to my car-accident in July 2011 (the sacroilliac-joint nerve-compression has prevented me from working since then, ok!), to right-back - to when my Dad died (I was 14-yo), and how my mum didn't cope then - back to my birth! The whole 'poster-place-card' of my life - compressed into a discussion which lasted over 2-hrs.





When I was asked to close my eyes and try to remember my last day with Dad - that was tough! I thought I would be ok, after all, it is 32-years ago... I crumbled, I could not stop it from happening.. After a minute or two of choking on my tears - I just let it bubble-over. So, I cried for a few minutes - but I did manage to go through the moments that I shared with Dad - on his last day. ... And, by the time I had recovered from that, things really became a lot easier. Thanks God. 


By the way - Happy Halloween! --- Do you like psychiatrists?


p.s.   Our chicken 'Polly' ...R.I.P (disappeared, 6th October, 2012), she was the real 'party-animal' at our place. She leaves behind - her other girlfriend, 'Merl-the-Girl'.





Monday, 1 October 2012

My Pain...

"My pain, is a drain on my brain! ...But, I will sustain my reign over my lame frame, to seize the day! ...While, asleep I play in my dreams!"

This was my latest post on my Twitter page; @GoatDodders


I had a spurt of inspiration, after reading a monthly-newsletter I've subscribed to (from a pain-treatment-Website!)...  Any way, I felt obliged to share my thoughts, so there!  Sometimes, there's no limit to the degree of help some people will give - freely!  Especially when it comes from those who "know" what they are talking about, because they live it too - PAIN! 





I have an observation.  That, "Chronic-Pain" is the one thing that is "super-slippery" on the surface!  Because, of all the symptoms of pain - chronic-pain (CP) - is the easiest to slip out, from under the microscope.  You can not see CP!  Not in an 'x-ray', not in an 'CT-scan', or even an 'MRI'... Nowhere, is CP visible! 


 If only we could treat chronic-pain as easily as a scratch or a cut! 



Saturday, 29 September 2012

A 2nd Opinion?

I went to a new Neurologist/specialist today!  It was for a 'second-opinion'!  I told him everything, from the beginning in 2007-(also see my page "The Man's Tale..." above)- except the parts I could not remember! That was where my BW-(beautiful-wife) stepped in to fill the 'gaps'.  I do have 'gaps' in my memory recall - it is like a 'fog', rolling in from the sea. Then it rolls back out again, so my BW  takes over the conversation, then I step back in again!

My Doctor today was Dr.B!  He spoke with clarity about my history, as he scrolled-through my 'medical-records' on his PC, only stopping to listen to my BW and I re-tell my 'time-line' from Day-0. He did the usual-battery of physical 'tests' on me too!; reflex's, pins, eyes-(...please follow my finger!), lifting of legs-(ha-ha), squeezing of fingers, etc.


But, there was a test performed on me today, which I had not done before!  The 'tuning-fork'!  That was a bit 'strange', I thought - Dr.B would bang the tf on his leg or the bedside - then place it firmly on my skin at various points! Then ask me - 'can you feel this'? ..what about this? ..or this? ..it got to the point where I could feel it on my head - but not really anywhere else! ...(lol)!

He said... 'now I have some ideas about what it could be - but I want to see some more tests! 

He then gave me a card with 7-blood tests on it!  And we said goodbye, but not before my BW turned around to say to Dr.B..."It's not psychological - you know!  This is not in his head!"  ..and with that, he retorted, "..oh no, no, no.  Definitely this is not!" -(in my head)- Whew!  So off I went to the 'vampires' and they took some of my finest 'red-wine'!  More news to come..!  Stay tuned readers!  Please accept my apologies, but alas, my bloody-fingers are starting to cramp-up!  I have to go, for now!  


But in the mean time, I thought I might take this opportunity to show you my new 'set-of-wheels'!  I have been looking at this little beauty for a few weeks now. It is so cheap to run! And the look on my face, when I bring it home!  ...Priceless!








Should I go for 'Left-Hand-Drive', OR 'Right-Hand-Drive'?

Thursday, 20 September 2012

The Things You Do...

I woke up this morning and felt some sharp, piercing, arching-pain - not in the 'usual-places'. More or less in 'the-middle'-right-side. It woke me - not unusual in that so much as I wake-on a pain impulse most always, anyhow. I had an appointment with my GP-(M.D), later on, so I'd ask about it then...
...It's all about the things you do - in the moment, when you least expect it, something comes from out of the blue - to wake you up! It happened for me when I was going over to fill-up my water-bottle from the tank. One small bump, and... just like that it was all over... snap; crackle; pop! After I got back up, I checked that I was (ok), I carried on - and picked myself up, dusted myself off and carried on!
Had I known then - what I know now, I would have made other decisions. Safer decisions - but the decisions we make are based on what we know now - 'in-the-moment'; and not-with the benefit of hindsight! And besides - I'm glad I carried on to finish what I started, because the pain was worth it. I got some valuable time with people that make me smile and laugh!
and the 'pain' was a reminder for me to ask the 'doc'... in the morning... about what I did?
...(I found out what I did - 3-cracked-ribs; and a 'bruised-kidney'!)

Have you ever kept going - even though you've done something bad?



Tuesday, 4 September 2012

Professor Graham Martin trained as a medical doctor;

I've been looking high and low for this particular podcast, which I listened to, back in February this year and finally I've found it! This is an interview between my local ABCradio identity-[Richard Fidler], and Dr. Martin, a lovely man whom I was fortunate to meet in person at a recent 'Spinal-Injuries-Association'-Day, earlier this year in Brisbane. Please click on the link below to listen to his insightful interview by podcast;


, Graham Martin had to shift from doctor to helpless patient, changing his whole thinking on medical care. A brilliant psychiatrist and researcher into the underlying causes of youth-suicide and self-harm. ...While at his desk one day in 2009, Graham experienced a stabbing pain in his stomach and creeping numbness in his leg. It was the beginning of a new phase of his medical education, this time as a patient...


I personally found Dr. Martin's story an absolute analogue to the type of experiences I was having in hospital, in 2007. A feeling of being 'held-up-to-the-light' like an experiment from the basement, with lots of poking and prodding and testing. Just not much in the way of answers!

Anyway, I hope Graham's story gives you the same dose of 'reality' that it gave me..? 

Friday, 10 August 2012

Curiosity Has Landed on MARS!

Weeee! So,it's been a month to the day since my last post.. Many reasons or excuses could be made, as to why. But they are all genuine ones, consigned to history. Just been dealing with it - getting on with life, because I have to look to the future. My future is bright - right..!

Anyway, I have to share my well-wishes with my readers and fellow bloggers out there. The news that NASA's "Curiosity-Rover" has landed safely, on Mars. This is amazing - to think that for 7-minutes-of-Terror', nobody knew-(if the Lander was "alive or dead". Those brief moments when the Rover was entering the atmosphere of Mars, from 1.the friction-of-deceleration; 2.the parachute-opening; 3.the slowing-down from 30,000kph-[17,000mph]-to 320kph-[200mph]; 4. the separation of the heat-shield; 5. the chute-separation; 6. the activation of the 'sky-crane' rocket-engines; 7. the "Touchdown" of 'Curiosity' on the surface of the Planet-MARS!!



Relive the nail-biting terror and joy as NASA's Curiosity rover successfully lands on Mars the evening of Aug. 5 PDT (morning of Aug. 6 EDT).

Tuesday, 10 July 2012

Ice Cube Blog! ...(all the way from Antarctica)

That's right folks! ...All the way from Antarctica. I may be a proud Aussie from Brisbane - with TM, but it thrills me to share this info about the wonderful science being done to advance our knowledge of the cosmos. I found a blog being written by folk who live and work 6-months of their year in the "coldest place on Earth" - down-under in Antarctica. Their blog is titled - "Ice Cube Blog" - check the link here; http://blog.icecube.wisc.edu/  (and they are from the University of Wisconsin/Madison). While they're freezing their butt's off - they are doing world-leading research into Neutrino's...!!!!! So, what are Neutrino's you say?


A Neutrino is a particle with almost no mass, because it's so small. Infinitesimally small - in fact! The only way they can be found is by discovering their 'trails', left behind after they've travelled through the Earth! These very clever scientists have built a 'neutrino-detector' the size of 1-Cubic-Kilometer - and all of it is inside the ice-sheet above the land-mass ofAntarctica, in the U.S.A-Antarctic-Territory!


Sometimes I get the urge to share these bits of trivia with you, and anyway it helps to take my mind off of the 'elephant-in-the-room' (TM). So enjoy, I hope you don't mind...












Wednesday, 4 July 2012

Birthday Wishes...


I love birthdays. Every one and everything is special on their birthday! Today is the 'birthday of the USA - 4th of July! ...and millions upon millions of people around the world - Happy Birthday to you! 

When I started to write this post - days ago... It was my wife's birthday too! I was writing in the late evening and I fell asleep at the computer!!! Not cool - when I woke up, my computer had 'hibernated' and since then... well, I haven't been on the computer for a week or so. Sorry, but my fingers and hands have been cramping quite a bit more than usual - lately.

In that time - since my last post, I've been lucky enough to be a big part in the BD-celebrations of some scouts I know; Steph; Aimee; and Angela... and - I had a (tiny)-piece of their BD-cakes too! ...YUM!

Sunday, 17 June 2012

Transit of Venus 06.06.12 is the Last for 105 Years!

Hello fellow readers, bloggers, everyone in the Universe!
Today is a great day! -(well when I started to write this entry it was actually the 6th of June, 2012)- ...anyway, I was privileged to be witnessing with my own eyes, an event in the cosmos that is very rare indeed. An event known as; The 'Transit-Of-Venus' across the Sun. In fact - I was with my 2 youngest sons-[mini-minigoat; & mini-mini-minigoat], so we got our telescope out of the house - and into the backyard. We set it up and were instantly rewarded with a truly awesome sight...

Well we didn't look at the Sun directly - that would be bad, right! What we did was, we set up the 'sun-viewer-attachment' which let us view the sun safely - reflected onto a viewing-plate...and it was awesome! The planet Venus was about the size of a match-head, located in the bottom-one-third of the Sun's face - but also alongside Venus were 5 or 6 Sunspots, each about the size of a small-pinhead. It was so cool watching history in the making. This phenomenon won't be visiting the eyes of earthlings for another 105-years!


This is a short video I took of the event, for posterity - with my 2Mega-pixel phone-camera; ...apologies for the quality, but you get the gist of it; minus most of the details unfortunately, there is a glimpse of Venus at about the 2m:20s-mark; and again at the 8m:30s-mark!...We also have a cat called 'Patch'-(though his screen name is 'Woodpuddle-Cat', but he makes an entrance for the camera too!...and manages to take my attention off the subject.


Tuesday, 29 May 2012

But you don't know what you don't know?

There are some moments in my days that require me to 'pull my socks up' and be brave when inside, I feel less inclined. One such moment was tonight when I was going through my facebook messages and I found one from an old friend of my family... A beautiful couple, with a great family too; 3 children-[2x girls and older brother].
I was reading their message - and I learned of their tragic loss of their oldest child. I have no words to explain what feelings were racing through my mind at that moment. I could only freeze, numb at the realisation of such a trauma - I instantly thought of my own family - and what if? I dread the thought, but I felt pain as if it was...for a moment.
I wrote back saying nothing of my realisation of their loss - I choked, I couldn't bring myself to mention it. I was feeling guilt, shame, sadness - but I feel hollow somehow. I knew him-[when] he was younger, but he was a wonderful son, and brother. I will treasure his memory. I will come to my senses and keep in touch with them.

Wednesday, 23 May 2012

International TURTLE Day Today!!!

Hello again everybody - I thought I would take a few minutes out from my own story to tell you a little bit about our local natural wonders. You see - I don't know how many people like turtles in the world?..But I think there is probably millions; or tens of millions! All I know is this fact - that my whole family loves turtles!!!!!!!! If it's a turtle in our local creek; or a turtle on the tele; in the news; on the ABC or BBC or whatever - we love ALL of them... especially the ones in our creek!

We have beautiful little 'longneck's with amazing eyes that 'check you out'. Then there is my wife - she is a complete mad-hatter fan of ALL-things-turtle - my wife, Ozjoe is a self confessed turtle NUT. One of the reasons why I love her so much!
We've even 'renamed' a local council-park - 'turtle park'. Just because there are quite a lot of Australian-long-necked-turtles nesting in the beautiful ponds and surrounds of the park - needless to say it's a favourite place to go for lunch & just watch them go about there day-to-day!
Oh yeah, I nearly forgot.....Happy International TURTLE-DAY!

Do you love turtles like we do too?

Wednesday, 16 May 2012

TM-Day in OZ Tomorrow...17th May, 2012

I nearly forgot to mention it! Tomorrow is TM-Day in Australia, and we are celebrating it with an exciting get together in Brisvegas - at the Spinal-Injuries-Association HQ in Woollongabba. It should be 'awesomeness'...!!!
We will be having a couple of guest speakers-[not sure who?]..oh wait, I think one of the speakers is a Professor of Child-Psychology at the Childrens Hospital in Herston - and he's a recent survivor of TM too. So, I'm sure he will have some really interesting things to say...
I think we might also be having a 'hook-up' via satellite/skype or something like that - with somebody really interesting too!
Sorry I'm not being all that specific - I'll tell you all more about it tomorrow. Till then, then.

Have you been to a TM event in your area - recently?

It is what it is...so suck it up, and move ahead...#2

I sometimes have days where the brain's in gear but the body is in neutral - or somewhere grinding between 1st-gear and reverse! ..even after I've had 2-days of solid rest!! So here goes - this is a little bit of [I told you so]. Last weekend I helped at our local youth-organisation's 'Leadership-Course'..not an issue, I've done it before-[15-months since my last stint], so anyway, I was really enjoying it - the comraderie between Leaders and the connections with the youth, they all make it worthwhile. I got a lot of positive feedback from my peers and the parents of the youths too! ...but then it started about 4-hrs after I got dropped back home on Sunday evening.
All my joints in my legs started trembling, muscles started chattering, electricity-shocks up my back! My wife OzJoe said - "I told you so you bloody idiot"...hehe.
...Anyway, 2 days later I was still feeling like crapola!...and I've got this weekends activities - that I must pace myself for!!!


Have you ever done something like that - knowing that the consequences would be bad?

Saturday, 12 May 2012

I don't know U...but U inspire me 2.

Social networking is wonderful for reaching out when you don't get out much / you know? ...Specifically Twitter - for instance I'm communicating with total strangers, but I feel like their my friends because they get me! ...sometimes, I feel it more so than the bloke next-door. It's a cliché, I know but it means a lot when you get a message or an email from someone that gets IT!!!
I just noticed that I've only done 2 blog-entries in April...sorry everyone, I will be more tuned in this month I just have been having some really bitchin-hand cramps in the last few weeks and that makes my smile turn upside-down :(
I've posted a couple of new entries in other areas of my blog / pages etc., and I've been thinking about doing some audio-entries of  my blog-posts too. Just need to figure out the technicalities - so.. Oh, and I've just updated my you-tube channel with a couple of videos, so I would love you to check it out.
Thank you everybody, I've just hit 450-views on my blog...awesome! I'm inspired....

Sunday, 6 May 2012

I don't know U, but U inspire me...

I don't know you, but you inspire me...I follow this blog-[see link below]. This is a story about a woman that has a fighting-spirit, a love for life. She has TM too! This is her story, as told by her daughter, [Jaclyn] in a blog called; I wear blue [click on the link below to see her story] The Best Mom on Wheels

Jaclyn Allmon at I Wear Blue - 1 day ago
Christopher Reeve Foundation has announced the 10 finalists for the 2012 Best Mom on Wheels competition. All women are so very deserving of this award. Please take a moment to view the finalists and VOTE for the story that inspires you the most. For me, my vote goes to my mom, Jan Allmon, a finalist in the competition!! Way to go mom. You are the BEST!!! (Watch a video about my mom)...just click on the link above.

Tuesday, 1 May 2012

NDIS...update from the rally yesterday!

Ok, so I was too bloody sore to go to the rally myself, in Brisbane. But I got this email update from the organising committee;
Dear Supporter,

What an amazing day!
15,000 Australians around the country have sent a message, loud
and clear. It's time to Make the NDIS Real.
Today Canberra responded. Prime Minister Julia Gillard addressed
the Sydney rally and announced the National Disability Insurance
Scheme would be launched in four sites across the country next
year, supporting more than 10,000 Australians with a disability
at launch.
Opposition Leader Tony Abbott joined passionate campaign
supporters in Perth and told the rally "everyone should get a
fair go and that's what the National Disability Insurance Scheme
is about".
We have had some great news today – but we can't stop yet. We can
't stop until the NDIS is introduced for everyone, for good.


And here's a clip of Tim McCallum - singing 'You're The Voice' at the Sydney Rally-(and some nice candid moments, shots of supporters with the PM, too!






It is what it is...so suck it up and move ahead !

I've had something of a realisation - in the last week...A change of heart, but in a good way!
It started, a couple of days before departure. I was lying in bed - I'd just woken up thinking I was stressing about getting ready for making a return to my Scouts. Another year had rolled by since the last canoeing-expedition. Back then, I was a lot more 'able' (than I am now), I was worrying about all the things that might go wrong-(with me) if I went on this trip, in so many ways I could be a 'ball & chain', or that my pain would get so bad, or I'd have a fall and be alone and not be able to get help!
Barrier, after barrier..I would be a failure!...I must have layed there for a while.

Then it was like a great big hand just 'slapped-me-in-the-face', a voice inside me said..'my, my, what about that. It is what it is...so, suck-it-up and move ahead !!!!!!!!!!!
So I did something about it. I realised that everyone I love in this world, love me for being me, my family and friends know what I've been through. Physically, I don't do what I used to do-(before TM) - but I hated myself for it, not thinking that my attitude had changed. It was my attitude to 'it'. My TM is with me, and the car-accident-(in 2011) has heightened my TM-symptoms. So I'm moving ahead.